ME/CFS - What is it?
CFS stands for Chronic Fatigue Syndrome (also known as Myalgic Encephalomyelitis - ME/CFS). It is a complex disorder characterized by persistent, severe fatigue that is not relieved by sleep or rest and that significantly affects daily life.
Symptoms
The most common symptoms of ME/CFS include
- Extreme fatigue that is not improved by sleep or rest
- Concentration disorders and memory problems ("brain fog")
- Sleep disorders
- Muscle pain and joint pain
- Headache
- Sensitivity to light and noise
- Dizziness or drowsiness
- Worsening of symptoms after physical or mental exertion (post-exertional malaise)
The exact cause of ME/CFS is not yet fully understood. However, it is thought that a combination of genetic, infectious, immunological and psychological factors may play a role. There is currently no cure for ME/CFS, but treatment focuses on alleviating symptoms, e.g. through pain management, sleep management and stress management strategies.
How I am doing
🧓
Degree of care
PG 4
Since 07.2025
♿
Severely disabled
100 %
Since 07.2025
🛏️
Bedriddenness
100%
Complete
🧠 Cognitive functions
🧠 Concentration
07.2025
Before: 3/10
A few seconds at a time
Current: 5/10
Simple activities for a short time
💭 Thinking
07.2025
Before: 4/10
Simple decisions
Current: 7/10
Longer thinking distances possible
📖 Read
07.2025
Before: 4/10
Short paragraphs with pauses
Current: 6/10
Reading with interruptions
💬 Communication
🗣️ Speak
07.2025
Before: 2/10
Single words per hour
Current: 5/10
Simple conversations occasionally
🎧 Listening
07.2025
Before: 2/10
Individual sounds possible
Current: 5/10
Simple listening with strain
⌨️ Writing
07.2025
Before: 2/10
Individual characters or words
Current: 6/10
Writing with interruptions
🏃 Activities
🍽️ Nutrition
07.2025
Before: 3/10
Snacks independently
Current: 9/10
Minor restrictions when eating
📺 Television
07.2025
Before: 2/10
Seeing by the second possible
Current: 5/10
Smaller clips in one piece possible
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