Category: My life with ME/CFS
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Everyday life with ME/CFS: Between nurse no. 17, clinic and hope
Four rescuers, a sling, stairs full of effort. A view of a clinic visit with ME/CFS.
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ME/CFS Phase 1: When life got out of sync
Phase 1: How it all began: A few harmless days in the fall of 2020 - walks, wellness, a bit of sport. Nothing I could explain at the time suggested that this period would be the trigger for a mysterious downward spiral that lasted for months.
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Post-exertional malaise (PEM) - the No. 1 symptom of ME/CFS
Post-exertional malaise (PEM) is the core symptom of ME/CFS - invisible, but determining everyday life. In this article, I tell you what PEM means to me, what hurdles I have recently encountered in the digital space - and how you can support Kurpfalzglück.
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ME/CFS and birthdays
Good news to start with. I'm feeling better, much better. Better than I've been in three and a half years. I've made a huge leap in the last three weeks. I'll update my condition page in the next few days. Now to my birthday: July 7, 1986 - Between reactor, sponge cake and realities On July 7, 1986, I went to...
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