Tag: ME/CFS
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Everyday life with ME/CFS: Between nurse no. 17, clinic and hope
Four rescuers, a sling, stairs full of effort. A view of a clinic visit with ME/CFS.
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ME/CFS Phase 1: When life got out of sync
Phase 1: How it all began: A few harmless days in the fall of 2020 - walks, wellness, a bit of sport. Nothing I could explain at the time suggested that this period would be the trigger for a mysterious downward spiral that lasted for months.
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Post-exertional malaise (PEM) - the No. 1 symptom of ME/CFS
Post-exertional malaise (PEM) is the core symptom of ME/CFS - invisible, but determining everyday life. In this article, I tell you what PEM means to me, what hurdles I have recently encountered in the digital space - and how you can support Kurpfalzglück.
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More visibility for ME/CFS: new presentation, new logo, new hope
Welcome back to my ME/CFS blog Kurpfalzglück.de. A lot has happened in the last few weeks - health-wise and on the website itself. I'm pleased to give you a personal update on my life with ME/CFS today: Progress, new features - and a piece of hope in paper form. 1. my state of health - progress in the bar chart I...
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