Kurpfalzglück | Visibility for ME/CFS. Now.

A man lies quietly in bed with his eyes closed, while behind him two people hold up a protest poster with the words "Make ME/CFS visible". Next to it is the slogan "Visibility for ME/CFS. Now." and the Kurpfalzglück logo
Show my current status (as at: 13.10.2025)

🧓 Degree of care
PG 4
Since 05.2021
Severely disabled
100 %
Since 06.2021
🛏️ Bedriddenness
100%
Complete

🧠 Cognitive functions

🧠 Concentration

10.2025
Before: 3/10
A few seconds at a time
Current: 2/10
Stimulus-response, no focus

💭 Thinking

10.2025
Before: 4/10
Simple decisions
Current: 2/10
Reaction without reflection

📖 Read

10.2025
Before: 3/10
Few sentences with difficulty
Current: 2/10
Individual words

💬 Communication

🗣️ Speak

10.2025
Before: 2/10
Single words per hour
Current: 2/10
Single words per hour

🎧 Listening

10.2025
Before: 5/10
Simple listening with strain
Current: 2/10
Individual sounds possible

⌨️ Writing

10.2025
Before: 3/10
Short sentences with effort
Current: 2/10
Individual characters or words

🏃 Activities

🍽️ Nutrition

10.2025
Before: 9/10
Minor restrictions when eating
Current: 2/10
Liquid food or small bites

📺 Television

10.2025
Before: 2/10
Seeing by the second possible
Current: 2/10
Seeing by the second possible

  • Changing times

    Hello dear blog readers, yesterday was the state election in Baden-Württemberg. I have been following the developments over the past few weeks and cast my vote by postal ballot. I am a little proud that I managed to keep the secrecy of the ballot: I made the crosses on my own and also sealed the envelope myself. The close election result

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  • After the firecracker

    New Year's Eve in Mannheim is over and we cleaned up during the night. A new year has begun for me too. What it will bring... ...let's see. I wish you all a Happy New Year 2026 and many new experiences. Cleaning up after the New Year's Eve party done quickly. (Image: City of Mannheim) I had a very surprising experience shortly before

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  • What moves me at the end of '25

    The year is drawing to a close - a year full of highs and lows for me. First and foremost, I would like to thank you all for: the many good wishesthe donations for my beloved Magicthe financial support that makes this blog possiblethe (sometimes surprising) visitsbut also the sharing of this website and my social media posts. The response

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  • Constant caregiver changes are stressful

    Hello everyone, Fabian has asked me (his mother) to keep you a little up to date. Unfortunately, he is currently worse than he has been for a long time: he can't eat on his own again, he can hardly talk and any loud noises bother him. Even reading is not possible at the moment - he looks at photos in very small doses. After

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  • Guest article by Berit & Tanis

    Hello everyone, unfortunately Fabian is currently feeling worse again, which is why he can't write to you himself. He sends his best wishes and is looking forward to hearing from you again. To keep the website up and running, Fabi has asked us to fill it with a little life. We, that's Tanis

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  • ME/CFS and the setbacks

    Unfortunately another setback

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  • Everyday life with ME/CFS: Between nurse no. 17, clinic and hope

    Four rescuers, a sling, stairs full of effort. A view of a clinic visit with ME/CFS.

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  • ME/CFS Phase 1: When life got out of sync

    Phase 1: How it all began: A few harmless days in the fall of 2020 - walks, wellness, a bit of sport. Nothing I could explain at the time suggested that this period would be the trigger for a mysterious downward spiral that lasted for months.

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  • Post-exertional malaise (PEM) - the No. 1 symptom of ME/CFS

    Post-exertional malaise (PEM) is the core symptom of ME/CFS - invisible, but determining everyday life. In this article, I tell you what PEM means to me, what hurdles I have recently encountered in the digital space - and how you can support Kurpfalzglück.

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  • More visibility for ME/CFS: new presentation, new logo, new hope

    Welcome back to my ME/CFS blog Kurpfalzglück.de. A lot has happened in the last few weeks - health-wise and on the website itself. I'm pleased to give you a personal update on my life with ME/CFS today: Progress, new features - and a piece of hope in paper form. 1. my state of health - progress in the bar chart Me

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