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Kurpfalzglück | Visibility for ME/CFS. Now.

A man lies quietly in bed with his eyes closed, while behind him two people hold up a protest poster with the words "Make ME/CFS visible". Next to it is the slogan "Visibility for ME/CFS. Now." and the Kurpfalzglück logo
Show my current status (as at: 13.10.2025)

🧓 Degree of care
PG 4
Since 05.2021
♿ Severely disabled
100 %
Since 06.2021
🛏️ Bedriddenness
100%
Complete

🧠 Cognitive functions

🧠 Concentration

10.2025
Before: 3/10
A few seconds at a time
Current: 2/10
Stimulus-response, no focus

💭 Thinking

10.2025
Before: 4/10
Simple decisions
Current: 2/10
Reaction without reflection

📖 Read

10.2025
Before: 3/10
Few sentences with difficulty
Current: 2/10
Individual words

💬 Communication

🗣️ Speak

10.2025
Before: 2/10
Single words per hour
Current: 2/10
Single words per hour

🎧 Listening

10.2025
Before: 5/10
Simple listening with strain
Current: 2/10
Individual sounds possible

⌨️ Writing

10.2025
Before: 3/10
Short sentences with effort
Current: 2/10
Individual characters or words

🏃 Activities

🍽️ Nutrition

10.2025
Before: 9/10
Minor restrictions when eating
Current: 2/10
Liquid food or small bites

📺 Television

10.2025
Before: 2/10
Seeing by the second possible
Current: 2/10
Seeing by the second possible

  • ME/CFS and the setbacks

    Unfortunately another setback

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  • Everyday life with ME/CFS: Between nurse no. 17, clinic and hope

    Four rescuers, a sling, stairs full of effort. A view of a clinic visit with ME/CFS.

    Read more...

  • ME/CFS Phase 1: When life got out of sync

    Phase 1: How it all began: A few harmless days in the fall of 2020 - walks, wellness, a bit of sport. Nothing I could explain at the time suggested that this period would be the trigger for a mysterious downward spiral that lasted for months.

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  • Post-exertional malaise (PEM) - the No. 1 symptom of ME/CFS

    Post-exertional malaise (PEM) is the core symptom of ME/CFS - invisible, but determining everyday life. In this article, I tell you what PEM means to me, what hurdles I have recently encountered in the digital space - and how you can support Kurpfalzglück.

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  • More visibility for ME/CFS: new presentation, new logo, new hope

    Welcome back to my ME/CFS blog Kurpfalzglück.de. A lot has happened in the last few weeks - health-wise and on the website itself. I'm pleased to give you a personal update on my life with ME/CFS today: Progress, new features - and a piece of hope in paper form. 1. my state of health - progress in the bar chart I...

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  • ME/CFS and birthdays

    Good news to start with. I'm feeling better, much better. Better than I've been in three and a half years. I've made a huge leap in the last three weeks. I'll update my condition page in the next few days. Now to my birthday: July 7, 1986 - Between reactor, sponge cake and realities On July 7, 1986, I went to...

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  • Hello and welcome...

    ...on my new blog. A huge thank you to all my helpers, without whom the realization of the homepage project would not have been possible due to my severe ME/CFS disease. I will introduce all the helpers soon. The idea for this page came to me in January 2023, but I was only able to work on it from October 2024.

    Read more...

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