Constant caregiver changes are stressful

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Hello everyone,

Fabian has asked me (his mother) to keep you a little up to date. Unfortunately, he is currently worse than he has been for a long time: he can't eat on his own again, he can hardly talk and any loud noises bother him. Even reading is not possible at the moment - he looks at photos in very small doses.

After his „regular“ carer went on her well-deserved vacation in the summer (and then fell seriously ill), there was a permanent change of carers. After three weeks of care by us, as the service was unable to find a replacement, a male nurse arrived for a few days, but she couldn't even cook. She was followed by two ladies (for 6 and 8 weeks respectively). A few days ago, a female nurse came for exactly 14 hours, but she immediately told us that this job was not her profile - she didn't want to do these tasks!

This constant restlessness is of course not conducive to Fabian's illness, which urgently needs a certain amount of calm and stability in his environment. My husband and I have been looking after him again for a week now. At least his regular carer has agreed to work with him again from the beginning of January.

When the demolition excavator comes ... (Image: KI)

He has one more piece of news for you:

We (Fabian's parents) have bought a semi-detached house in Brühl-Süd (a municipality on the southern outskirts of Mannheim), which we will probably move into with Fabian in early summer 2026. It's on the edge of a field and has a lovely garden. The main reason for the purchase was that our neighboring house in Mannheim is being demolished to make way for a 5-storey office/commercial building - with all the two years of massive construction noise and construction site traffic.

Fabian - together with the caregiver - will get the relatively barrier-free apartment on the first floor in Brühl. His room (actually the living room) is right next to the garden, and he can be pushed out onto the terrace through the large balcony door if he wants to. He will hopefully find more peace and quiet there: The numerous inner-city events will also be a thing of the past.

Best wishes from Fabian - and feel free to send him messages or photos, he is very happy when he realizes that you are thinking of him. I'll write him the messages in short form on a piece of paper.

He really wants to keep this portal going, which is why he is still urgently dependent on donations for its operation. It would be great if you could support him here !!!!

Sabine

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